OVERVIEW
Please join colleagues and experts September 18-21 at the University of Michigan in Ann Arbor for this collaborative and informative conference which will bring multi-disciplinary experts together to identify best practices in the clinical management of these unique pediatric patients.
Pediatric renovascular hypertension secondary to renal artery stenosis and abdominal aortic coarctation is exceedingly rare and risks significant morbidity and mortality. The pathophysiology and etiology of both remain poorly defined. Moreover, the low frequency of this disease limits existing data to institutional series and anecdotal case reports.
Building upon our first Symposium that took place in 2019, we will once again bring together distinguished speakers from leading institutions
as well as patients and their families. Together we will highlight best practices in patient care, recent discovery, and ongoing research via collaborative, interactive seminars and group discussions. This 3-day Symposium will dedicate individual days to Scientific presentations, Patient-Centered Outcomes Research, and Patient and Family networking. We encourage you to join us for this collaborative and informative symposium.
This symposium is partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (19976-UM) and the Taubman Institute.
REGISTRATION
Admission to the conference is free for patient/family members and $150 for clinicians and researchers. We will also try to share presentations virtually and that is free, link will be sent if the person registers for Virtual Attendance. Breakfast, lunch and coffee breaks will be served. Please register at our Eventbrite site to reserve a space and receive periodic conference updates.
Monday and Tuesday sessions will take place at Rackham Graduate School, 915 Washington Street, Ann Arbor, Michigan 48109
Wednesday program will be offsite
PROGRAM
Monday, September 19, 2022
- Scientific Session 1 – Pediatric Renovascular Hypertension – Translational Science
- Scientific Session 2 – Pediatric Renovascular Hypertension – Associated Pathology
- Scientific Session 3 – Pediatric Renovascular Hypertension – Novel Imaging Techniques
- Scientific Session 4 – ‘The Solution Room’: Treatment Options for Pediatric Renovascular Hypertension
Tuesday, September 20, 2022
- Welcome and PCOR/PCORI and pRVH PCOR Collaborative Overview
- SEED Method
- VRN Survey Updates
- Improving QOL, educational and health outcomes in children with chronic medical conditions
- Multidisciplinary Approach to the pRVH Patient Care Team
- Stakeholder Engagement Panel
- Working Groups
- Family Networking
Wednesday, September 21, 2022
- Big House Stadium Tour
- Patient and Family Networking and Presentations
- Q&A session with Clinical Team
TRAVEL INFORMATION
AIRPORT
Ann Arbor is about half an hour by car from Detroit Metropolitan Airport (DTW)
TRAIN
Ann Arbor’s Amtrak station is half a mile from the U-M campus
GROUND TRANSPORTATION
For reserved ground transportation from Detroit Metropolitan Airport to the hotel, we suggest Golden Limousine or Metro Cars.
HOTEL
A limited block of rooms have been reserved at The Graduate, within walking distance of Rackham Graduate School. (Please contact Kori Jones at kcotter@med.umich.edu for information regarding discounted room availability at The Graduate).
Additional local lodging may be found at:
Residence Inn Ann Arbor Downtown
DoubleTree by Hilton Ann Arbor North
Bell Tower Hotel
Hilton Garden Inn Ann Arbor
Fairfield Inn Ann Arbor
ORGANIZERS
Co-Chairs:
Dawn Coleman, MD (University of Michigan)
Rulan Parekh, MD, MS, FRCPC (The Hospital for Sick Children)
Santhi Ganesh, MD (University of Michigan)
SPONSORS
This symposium is partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (19976-UM) and the Taubman Institute.